Rare Disease Day is February 28. The day is designed to raise awareness of these diseases which affect more than 300 million people worldwide. Hundreds of events have been organized around the globe from the end of February through mid-March and Ben’s Friends is participating in a number of US events for the first time.
Ben’s Friends’ brochures will be distributed at:
- Nationwide Children’s Hospital – Columbus, OH
- Washington University School of Medicine – St. Louis, MO
- Case Western University- NORD (National Organization for Rare Disorders) event, Ohio
- Arkansas College – NORD event, Arkansas
- Samuel & Josephine Plumeri Wishing Place-NORD event New Jersey
A huge thank you in advance to our advisers and members of the executive team who are presenting at the following virtual events:
- NORD Rare Network PA – Richard
- NORD Rare Network IA – Richard
- NORD Rare Network NY – Matt
- NORD Rare Network KY-Tom
- A slide introducing Ben’s Friends will be shown at: University of Buffalo/Jacobs School of Medicine and Biomedical Sciences
February is also designated as American Heart Month. Ben’s Friends’ list of communities includes atrial septal defect and congenital heart defects. Check out this blog that we shared to our members about congenital heart defects.