We’re excited to announce that Ben’s Friends will soon launch a community for moms who have kids living with a rare disease, inspired by the warrior mothers some of our organization’s members met during Rare Disease Day. Thank you to the development team and Matt H., one of our advisors, who funded the new community. We have also been added as a resource by two institutions based in the U.S.
1. Ben’s Friends was added as a resource!
The National Organization for Rare Disorders (NORD) and KGA, a top-tier Employee Assistance Provider, have added Ben’s Friends into their system as a resource. We look forward to helping more people affected by a rare or chronic illness.
2. Coming soon: Warrior Moms Living with Rare Disease
Being a mom of a child who is touched by a rare disease is quite a challenge! But soon enough, these warrior moms will have a safe and supportive community of their own under Ben’s Friends.
3. What You Need to Know About Sjögren’s Syndrome
April is Sjögren’s Syndrome Awareness Month. We shared some information to our members about this often mis- or undiagnosed disease.
4. Sarcoidosis Awareness: Shedding Light on a Rare but Significant Disease
Sarcoidosis can affect almost any part of the body. While some patients with Sarcoidosis can be completely asymptomatic, others may experience severe symptoms which can cause permanent organ damage if not detected early. We sent this blog to our members to promote awareness about Sarcoidosis