In this update, we’re sharing tips on how to help friends living with addison’s disease, myasthenia gravis, and interstitial cystitis. We’re also sharing some information about rare sleep disorders, narcolepsy, and invisible illnesses.
Also, two of our members shared how joining Ben’s Friends helped them and our lead intern, Arjuna, is off to medical school! Thank you for your support!
1. 4 Things to know to help a friend living with Addison’s Disease
Living with Addison’s Disease can have a huge impact on a person’s life. Having friends who care can definitely help. Check out what we shared on this blog.
2. Some of the Rare Sleep Disorders
In this blog, we shared some of the rare sleep disorders and invited those dealing with a sleep problem to join our Living with Sleep Disorders community.
3. 4 Things You Can Do to Help a Friend with Myasthenia Gravis
Check out the tips we shared on how to help friends and loved ones living with myasthenia gravis.
4. Narcolepsy Is Beyond Sleepiness. How Does it Affect a Patient’s Life?
In this blog, we hope to spread awareness about the nature of this neurologic disorder and its impact on the patient’s life.
5. What is Interstitial Cystitis and What Can You Do to Help?
The symptoms of interstitial cystitis are not the only challenges patients have to deal with. They are also confronted by the lack of people’s awareness about this condition. Check out these tips on how to help patients.
6. What You Need to Know About Invisible Illnesses
Many chronic illnesses are invisible and people are not aware of the struggles patients deal with. We want to help spread awareness about invisible illnesses through this blog.
7. Congrats to our intern Arjuna who is off to medical school!
“I have been working at Ben’s Friends for 4 years now. I started in 2018 after a good friend of mine who used to volunteer here told me about the wonderful support communities here. Being part of the Ben’s Friends family is one of the things I am most grateful for.”
8. Why we do, what we do. Recent notes from supporters…
“I think the work Ben’s Friends is doing impacts people and communities in significant ways. I love that it’s accessible to many and connects in ways no other community does. Keep up the great work, would love to see more growth and perhaps a mobile app in the future.” – L.L.
“I was re-coming to terms with a ruptured AVM as a child. I joined up to AVM Survivors, and the discussion thread really helped. I’m based in New Zealand, and at the time there was little knowledge or support here. The forum helped me to better understand my journey and not feel so alone.” – Kay