In this update, we’d like to introduce to you one of our new volunteer moderators and give some updates about our Patreon project. We’re also sharing the article that we posted to promote awareness about erythromelalgia.
1. Now Hiring a Development Officer
Ben’s Friends just started a nationwide search for a professional fundraiser (aka Development Officer). This professional fundraiser would mostly focus on building long-term partnerships with family foundations and corporations.
Can you help by posting this link on your social media? Thank you!
https://www.linkedin.com/jobs/view/2990443328/
2. Spotlight on our moderator: Norm of the Living with PsA Community
It’s no secret that our moderators play a crucial role in making our communities the safest and most supportive there is online. That’s because our moderators are members themselves who value our community so much. Check out this blog to meet Norm, one of our newest moderators.
3. What People Living with Erythromelalgia Experience
Since it is a rare disease, very few people are familiar with erythromelalgia. But as more people learn about it, there could be more people supporting advocacies that would benefit patients and their families. We’re hoping to raise more awareness about erythromelalgia through this blog.
4. Patreon Update
As of March 1, we have raised a total of USD 2538.85 through Patreon donations. We have also started sending out a regular newsletter to our Patreon donors as well as testing new marketing strategies to gain more patrons.