In this update, you’ll meet our Lead Interns Danielle Havord-Wier and Arjuna Srikrishnaraj, learn about the different ways to help OPMD patients, and find out the benefits patients receive from online support groups.
1. Some of the Things You Can Do to Help Patients with OPMD
This article discusses some of the things other people should know and can do to help their friend or relative living with OPMD
2. Spotlight: Ben’s Friends Lead Interns
Meet Danielle and Arjuna and find out what being a Ben’s Friends Intern means to them.
3. Benefits of Having a Rare Disease and Chronic Illness Support Group
This blog post highlights some of the ways a patient benefits from an online rare disease and chronic illness support group.
4. Patreon Project
Last year, we launched a number of experiments to find the best fundraising design using the Patreon platform. We have created Patreon pages for our Living with PSA, AVM Survivors, and Living with Fibromyalgia communities. Everything we have learned from previous iterations was applied to the Ben’s Friends Patreon page.
While all of these pages are active and generating donations, it is the Ben’s Friends Patreon page that we are actively promoting.
At present, we receive a net monthly donation of USD 119.69 from all our Patreon pages.