In this update, find out what Ben shared in the podcasts Once Upon a Gene and Nonprofit SnapCast and learn what makes Chiari Support a wonderful community all these years.
We are also about to conclude our World Rare Disease Day fundraiser and we’re sharing with you some of the details here.
1. Once Upon a Gene podcast Features Ben’s Friends
This blog highlights what Ben and Effie Parks talked about in the podcast which includes the story behind the founding of Ben’s Friends and what ripple effect the community has on the people that found help on the sites.
2. Nonprofit SnapCast Features Ben Munoz
This blog shares some of the things Ben and Mickey Desai covered in the Nonprofit SnapCast episode which revolves around how the organization is able to do more with less resources.
3. Happy 11th Anniversary, Chiari Support Community!
What makes Chiari Support a great community? Find out in this blog.
4. Ben’s Friends World Rare Disease Day Fundraiser
Just a quick update on our World Rare Disease Day fundraiser. We launched our GoFundMe fundraiser earlier this month and promoted it through an email series sent to Ben’s Friends past donors, friends and family.
Twenty four individuals have already extended their support either directly through GoFundMe or other methods such as via Paypal or check. We have so far received $19,450 in donations. Thank you for your support.