In this update, we’re sharing some information about Fabry that you can forward to friends to help raise awareness this month.
Also check out some of the things that patients with chronic illnesses like trigeminal neuralgia and systemic lupus erythematosus might be experiencing and how friends and family can possibly help.
1. April is Fabry Awareness Month
This month, help spread awareness about Fabry so that more people could be diagnosed earlier and receive appropriate treatment.
2. An Unspoken Conversation between a TN patient and Her Son
Chronic illnesses can affect a patient’s relationship with a loved one, but it doesn’t have to be a negative effect. What could be a good conversation between a patient and a family?
3. Some things to understand about systemic lupus erythematosus (SLE)
Know anyone living with SLE? Check this blog and find out some of the ways you can help.
4. Chan-Zuckerberg Rare as One project EDs Tom and Clasina are preparing a grant application to the Chan-Zuckerberg Rare as One project. They would appreciate hearing from you if you have any insights, “ins” or advice on this.