As we approach the end of the year, we just wanted to take a moment to express our gratitude for your involvement with Ben’s Friends.
You’ve played a crucial role in the incredible journey of Ben’s Friends, helping it evolve into a network of 48+ online support communities that make a difference in the lives of thousands of patients every day.
We invite you to check out some of the highlights from this year at Ben’s Friends and see the positive outcomes your contribution has helped us achieve.
1. Ben’s Friends’ Partnership with WITT
Through our collaboration with “We’re in this Together,” members from Ben’s Friends AVM Survivors Community, Living with Eagle Syndrome, and Life with Lupus Communities were granted access to register on WittForever.com.
This opportunity empowers patients to establish personalized registries, enabling them to seamlessly receive both financial and non-financial support from friends and family, all without the need for direct requests.
2. Our Participation in this year’s NORD Rare Disease Day Events
Thanks to our amazing advisers and executive team members, Tom James, Richard, and Matt, participants in 4 NORD Rare Disease Day events learned about the amazing work we do at Ben’s Friends.
3. Launch of Ben’s Connections on Living with PSA Community
After our dedicated efforts, Ben’s Connections has finally been launched. Members of our Living with Psoriatic Arthritis Community are the first among our members to benefit from the amazing features of Ben’s Connections, such as tapping into the most recent research and treatment options for their condition. Stay tuned as we plan to roll out this initiative to other communities.
4. Launch of Warrior Moms Living with Rare Disease Community!
In a significant development this year, we successfully launched the Warrior Moms Living with Rare Disease Community at Ben’s Friends. This community serves as a dedicated and secure space for mothers and fathers raising children with rare and chronic illnesses.
5. Thank you for participating in our #GivingTuesday campaign!!
In collaboration with Rare Revolution Magazine, we joyfully observed Giving Tuesday, an occasion that enabled us to amplify awareness about Ben’s Friends.
This partnership created an opportunity for a broader community to join us and educate patients and their families about the integral service Ben’s Friends provides.
A heartfelt thank you to everyone who actively participated in the Giving Tuesday Campaign – your support is instrumental in fostering positive change within our communities.